There is a form of therapy called Systematic Desensitisation. The aim of this therapy as I understand it is to modify the fear and anxiety responses associated with, for instance a phobia, and replace these responses with relaxation techniques using what is called counter conditioning. The idea is that by being exposed to the trigger in a controlled environment and actively trying to modify responses eventually the intensity of the response will become diluted and by default manageable. Ok so if you are thinking of leaving the page please hang on in here. I am not suggesting that experiencing pain is anything like experiencing a phobia which is kind of irrational fear response, but for me the withering pain of CRPS, with its muscle spasms, shooting pains, burning sensations, hyper allodynia (extreme sensitivity to touch) created a kind of whole body response in anticipation of a wave of pain. I was lucky enough from about 5 weeks into the condition to have the support of a friend who somehow immediately understood the importance of desensitisation. I was lucky in that she and her husband invited me to stay with them and she began a programme of “massaging” my hand up to 4 times per day. When I say massage, in the beginning it was literally holding my hand and gently brushing her hand over my skin. This stroking progressed into more of a massage as the desensitisation began to work. Make no mistake it was excruciating! It also took months to free up the fingers. I always soaked my hand in a jug of hot water before we began. I used to read to her while she worked on my hand. It had the effect of focussing elsewhere and since I believe laughter is the best medicine we read Carl Hiaasen novels. They are hilarious if you like farce. The point is that throughout all this procedure I was also actively trying to modify my responses to the impending waves of pain. This included not closing my eyes and tensing my face in anticipation, not clenching my jaw, not stopping breathing – really, really hard with cramping and spasms. All of this effort mostly resulted in a really gummy and tight feeling in my hand and did not seem to be having any effect, but my friend persevered even when I wanted to give up and finally it began to work. Where there had just been a bloated purple hand, we began to see a pinkness around the knuckles. It went away again, but finally I was able to separate my fingers and really begin to use my hand for small tasks, which in itself was really beneficial physically and psychologically. I know that I was so fortunate to have had the love of my friend to do this, but I hope that this information may be useful to anyone in the early stages of CRPS who are avoiding any contact with the affected location. I would say if it is possible try to stroke it, draw a towel across it, try to manage your responses to the pain and keep it up! Don’t give up! It is a horrible dark condition, but if it is in a hand or foot try to bring it back to life by having some input mentally and physically. Be careful not to force movement particularly as CRPS can diminish bone density try to focus on active movement. Always be guided by a physio, occupational therapist or other health professional. They will encourage you. Don’t give up
Active Movements Passive Movements